We receive many requests for
information from students at school, TAFE and university
so this section of the website provides answers to the
questions students most often ask. It includes links to
other parts of the website where you can find more
detailed information.
We'll add more answers as we get
more questions.
Please
phone or email us if your
question isn't answered here yet.
1. What is MDAA and how
long has it been around?
MDAA is the
Multicultural Disability Advocacy Association of
NSW, the peak body for people from non-English
speaking backgrounds with disability and their families
and carers living in NSW.
MDAA is a community based
association incorporated in 1995. The idea for setting up
MDAA came from some of the work being done by the
Ethnic
Child Care Family and Community Services
Co-operative.
Our members are people
from a non-English speaking background (NESB) with
disability, family members and other unpaid carers, and
other people or organisations who support MDAA's aims,
eg, disability advocates, health and community service
workers, disability advocacy organisations, and other
community organisations.
2. What are MDAA's aims?
To promote, protect
and secure the rights and interests of people from a NESB
with disability and those of our families and
carers.
MDAA Mission
and Aims.
3. How does MDAA pursue its
aims?
Through
MDAA services we provide
are included individual advocacy; systemic advocacy;
advocacy development; industry development; and training
in disability and cultural awareness.
Also see the answer to
question 7 for more details.
4. What is a community
based organisation?
An organisation
made up of people who join because they support the
organisation's aims and objectives. The organisation's
constitution is the document that sets out the
organisation's aims and the rules for how it should be
run.
Many community
organisations receive funding from the state, federal
and/ or local government/s to assist their work but they
are independent of government/s.
Click
here for MDAA's Constitition.
5. Who runs
MDAA?
MDAA
is run by a Board which
has at least 6 and no more than 13 members who each serve
for a term of 2 years. The Board is
responsible for controlling and managing MDAA's affairs.
MDAA's constitution provides that at least 50% of
management committee members must be individuals from a
NESB with disability and at least 25% should be family
members.
MDAA's constitution
provides for two main types of members: those who can
vote (to elect the Board) and those who
can't.
Members who can vote are
the ordinary members (individuals from a NESB with
disability, advocates, people with expertise in the
disability and/ or ethnic field) and family/ carer
members (people living in the same household in a family
structure - family in all its forms). Voting members have
the opportunity to elect members to the management
committee at MDAA's annual general meeting.
Members who can't vote
are associate members (any group of people - informally
or formally incorporated).
Ordinary members who want
to be on the Board can nominate themselves
or ask another ordinary member to nominate them. So long
as they have the signed support of two other ordinary
members their nomination is accepted. If more members
nominate than there are vacant positions on the
Board, all ordinary and family/ carer members can
vote for the candidates of their choice. For example,
there are 13 positions on the Board and if 7 members
have served for two years, there will be 7 vacant
positions to vote for at the annual general meeting. If 9
members nominate for those 7 positions, all ordinary and
family/ carer members of MDAA are invited to vote in the
election. Each Board member serves for two years and
can re-nominate at the end of their term to be on the
committee for another term (up to a maximum of five terms
or ten consecutive years).
The Board
sets the direction for MDAA and decides which areas of
work the organisation will focus on as priorities. These
key priority areas are set out in MDAA's
strategic plan.
The Board
members are all volunteers as MDAA's constitution
prohibits a member from gaining any financial benefit
from being on the Board. The Board has
legal responsibilities to ensure that MDAA spends the
money we receive for the purposes specified; that we
don't get into debt; and that we manage any risks
effectively, eg, financial, health and safety risks.
The
staff (volunteer and employed) at
MDAA do the work
required to put the strategic plan into
operation.
6. What is
advocacy?
Advocacy has
various meanings:
- to stand beside
someone and support them
- to speak in favour of
someone
- to argue in support
of a cause or policy
At MDAA we see advocacy
as standing with a person from a NESB with disability,
assisting the person to get what they need and making
sure their rights are respected, not ignored.
See the answer to
question 7 for details of how we do this.
7. What services does MDAA
provide and who can use them?
MDAA
provides 5 main services:
individual advocacy; systemic advocacy; advocacy
development; industry development; training and
information.
We help people to stand
up for their rights, for example, when people have
problems with housing, immigration, school, work and
disability services. We do this for people from a NESB
with all types of disability and their families and
carers across NSW, from our offices in Sydney,
Wollongong, Newcastle and Griffith.
Any person from a NESB
with disability or anyone who is a family member or
provides unpaid care for a person from a NESB with
disability can
get assistance from one of MDAA's individual
advocates if they
have been unable to resolve a problem themselves.
The most common problems
are about housing, employment, disability services,
health, transport, education, immigration, police, the
legal system and social security. Individual advocates
work with the person to agree on an individual plan which
sets out what actions the person will take and what
actions the advocate will take to resolve the issue. We
write letters, talk to service providers, attend court or
tribunal hearings, participate in case conferences, etc,
with and for the person to get what the person
needs.
b) Systemic
advocacy
We work towards positive
change in policies, procedures, practices and service
delivery in government and non-government agencies. If an
issue affects more than one person MDAA can take it up as
a general issue with the service or government agency
concerned. We write letters to government ministers and
submissions to parliamentary inquiries; organise meetings
with politicians and senior public servants; participate
in committees and working groups of community
organisations who get together to try to resolve the
issue through a united approach; we discuss issues with
service providers; conduct research; etc. For examples of
the systemic work we have done go to MDAA Systemic
Index.
c) Advocacy development
We work towards positive
change in attitudes and increased awareness among
communities, with a focus on disability and ethnic
communities.
Click here for our
Advocacy
Development Project
Information.
We work to ensure that
people from a NESB with disability and families know what
our rights are as NSW residents and know how to ensure
that our rights are respected, not ignored or infringed.
We do this by providing education and training to people
from a NESB with disability and families, to explain the
rights of people with disability and to develop skills in
advocating for our rights to be respected and upheld.
Every year staff invite
MDAA members and consumers to a meeting to discuss what
areas we should focus on for training and information
over the coming twelve months. MDAA staff then arrange
regular consumer forums throughout the year where members
and consumers have the opportunity to discuss those
topics with experts in the area. Examples are: what local
councils do; how disability employment services can
assist people to find a job; pre-election how to vote
sessions with speakers from the Australian Electoral
Office; discussing immigration matters with immigration
experts; having experienced solicitors speak about
workers' compensation rights and personal injury claims;
having speakers from Centrelink discuss payments
available to people with disability and carers; hearing
from experts in public and community housing; having
police and lawyers talk about criminal proceedings and
courts.
We
also hold disability awareness
days for ethnic
communities, to broaden the understanding of the various
communities in NSW about disability and the services
available to assist people with disability and their
families/ carers.
Our
regional 'Advocacy in Action' project
assists people
with disability living in rural and regional NSW to
participate in their local communities. This project aims
to set up sustainable self-advocacy networks where people
with disability from the whole range of cultural
backgrounds can work together to improve local conditions
and contribute to resolving state-wide
problems.
We also offer training
for MDAA members and consumers who want to work with
services
and agencies interested in making their service more
accessible to
people from a NESB with disability. These members and
consumers act as Community
Voices, talking
about their experiences of living in NSW as people from a
NESB with disability and family members.
d) Industry
Development
We work with communities,
government and private agencies to increase knowledge and
understanding of the experiences of people from a NESB
with disability.
We do this by developing
resources and providing
information, advice, training and support and through our
Community Voices project.
Community
Voices are people from a
NESB with
disability and their families and friends who are trained
in public speaking and who are willing to share their
stories. This project uses the skills and expertise of
the Community Voices to educate and raise awareness about
the diversity of the community and how to provide better
access to services for people from a NESB with
disability.
MDAA works with a wide
range of services to make sure people from a NESB with
disability and our families have equal access to those
services as Anglo-Australians. From Australian Bureau of
Statistics Census and other information MDAA estimates
that 1 in 4 people with disability in NSW are from a NESB
(first and second generation NESB) but a recent
Productivity Commission report confirms that only 1 in 50
disability service users are from a NESB. If people from
a NESB were accessing disability services at a rate equal
to our proportion in the community this figure would be 1
in 4, not 1 in 50. This means that at least 3 out of 4
people from a NESB with disability miss out on receiving
services simply because we are from a NESB.
For details about how we calculated these figures
see
the first question at
FAQ.
MDAA has been working to
redress this imbalance by developing
resources and publications for service
providers to
improve access to their service for people from a NESB
with disability and our families and carers.
e) Training - 'mdaa
cultural abilities'
MDAA also offers
fee-for-service training in disability and cultural
awareness through our training program 'mdaa cultural
abilities'. We became a registered training organisation
in 2004 and we publish a training calendar each year
which includes courses leading to nationally recognised
qualifications as well as other training -
see
our latest calendar for details. We also
tailor training specifically for organisations or groups
who prefer this.
We offer services the
opportunity to do a cultural competence audit of their
own service to work out how accessible their service is
to people from a NESB with disability and families. We
offer training in cultural competence for staff working
in disability services and other mainstream.
Community
Voices also make
themselves available so organisations can hear first hand
about the experiences of people from a NESB with
disability and our families.
MDAA does not interpret
or translate material for other organisations but we
often use interpreters and translators in our work and
we
encourage other services to do this
too.
We
provide training and
information on
how to use interpreters and how to get good
translations.
8. What is
'disability'?
A very good
question. The answer depends on who you are and where you
are from. When people think about disability lots of
labels and classifications spring to mind: physical
disability; intellectual disability; mental illness;
sensory disability (vision/ hearing impairment);
neurological disability; autism; learning disability;
developmental delay; etc; etc. All of these concepts are
culturally based - we are not born with any knowledge or
awareness of what disability means - we acquire it as we
go along through life and our views often change with
experience.
In 2003-4 we asked 10
different communities in NSW this question and we
received quite a range of answers. People from different
cultural backgrounds have different beliefs about
disability and different attitudes towards people with
disability. Not all people from the same cultural
background share the same beliefs and attitudes. Some
people believe disability is a gift from god; others
believe it results from something an ancestor did many
years earlier; some believe it is associated with
something that happened to the mother during pregnancy;
others believe it is a medical problem that can be cured,
either now or some time in the future.
For many people in
Australia and elsewhere disability is associated with
stigma and shame and this results in people being hidden
within the family or taken to live in an institution,
unable to participate in community life. Through the hard
work of people with disability, our families and
advocates over many years these negative attitudes are
changing in Australia and the NSW government has stated
its commitment to assisting people with disability to
live in the community by closing down large institutions
and providing other forms of support.
To see the variety of
responses people have to disability go to
Opening
Doors Publications.
There are also some
interesting philosophical debates about this
question:
- Is disability an
individual or family problem or does disability arise
mainly because of the way societies function?
- Why do we as a
society focus on what a person cannot do rather than
what they can?
- Why do we label
people 'disabled'?
- Why do we design
buildings, forms of transport and services that
exclude some members of the community? If all
buildings, transport and services were designed to
accommodate the needs of everyone in the community,
everyone would be included as fully as possible and
able to participate as equal members of the
community.
- If people with
disability work and pay taxes like everyone else why
shouldn't our needs be accommodated just like everyone
else's?
- What would a society
look like if everyone's needs were taken into account
by educators, planners, architects, engineers,
designers, builders, governments, health services,
etc?
- What would it take to
make Australia a society like that?
9. Why does MDAA only work
with people from a NESB - doesn't everyone with disability
need advocacy support?
Good question.
There are several organisations who provide individual or
systemic advocacy (or both) to people with a disability
in NSW, eg, NSW
Council for Intellectual
Disability;
Physical
Disability Council of
NSW;
People
With Disability
Australia;
Brain
Injury Association;
and Family
Advocacy. The
Indigenous Disability Advocacy Service (IDAS)
provides advocacy assistance to Aboriginal people and
Torres Strait Islanders living in NSW. MDAA is the only
organisation that provides advocacy support specifically
to people from a NESB with disability, their families and
carers living in NSW.
We do this because people
from a NESB with disability have such difficulty getting
access to services [see the statistics in answer to
Question 7 (d) above] for various reasons, including
not knowing our rights, not understanding 'the system',
and 'the system' not understanding us! We look forward to
the day when MDAA is no longer needed because all
services are accessible to people from a NESB with
disability and all services respond competently to the
needs of anyone eligible for their service, regardless of
the person's cultural background.
Most of the funding we
receive is specifically for providing advocacy assistance
to people from a NESB with disability, their families and
carers. For more details of what 'NESB' means see
Figures
Information.
10. Where does MDAA's money
come from?
Most of MDAA's
funding comes from the Commonwealth and NSW governments,
through the NSW
Department of Ageing, Disability and Home Care
(DADHC) and the
Commonwealth
Department of Family and Community Services
(DFaCS). That
funding pays for most of our staff and the services we
provide.
We also apply for grants
from other government departments (eg, NSW
Health;
Premier's
Department);
local government (eg, Parramatta
Council) and
private foundations.
MDAA is a public
benevolent institution and an income tax exempt charity.
Donations to MDAA are therefore tax deductible. Anyone
can make a donation to MDAA.
11. Is MDAA a government or
non-government agency?
MDAA is a
non-government agency.
For details see Questions
1, 4 and 5 above.
12. Does MDAA have any
opportunities for students to do a placement or work
experience?
Whenever we can we
offer students at TAFE and university the opportunity to
do a work placement at MDAA, particularly those studying
social sciences, disability studies and associated areas.
We don't have the
resources to offer work experience for secondary school
students.
We welcome volunteers any
time.
13. Where is
MDAA?
Our main office is
in Harris Park. Our
regional advocates
work in Griffith, Newcastle and Wollongong.
Click
here for MDAA Contact Details
Information.
|